A post outlining what rare disease day means to me.
So I managed to return to my job for 2 days before being told it was unsafe to be on…
Having heard the news of last night, I’m sure many of us are left feeling anxious, overwhelmed and unsure of…
I’m sat awake in the middle of the night writing this. I’m tired but my mind won’t switch off. I…
Hi! It’s been a while, but quite frankly I’ve had nothing to say or update with. Time has flown by…
