A post outlining what rare disease day means to me.
So I managed to return to my job for 2 days before being told it was unsafe to be on…
To my lungs; I sometimes think I owe you an apology, You have fallen down a rabbit hole which perhaps…
I’m sat awake in the middle of the night writing this. I’m tired but my mind won’t switch off. I…
Hi! It’s been a while, but quite frankly I’ve had nothing to say or update with. Time has flown by…
Last night took a pretty crazy turn for us and at a pretty rapid speed. Within 60 minutes we had…
When having an illness, both mental or physical, it can create a huge impact on who you are as a…
It’s day 4 of social distancing and today I have been lucky enough to chat to a lovely group of…
I sometimes wonder how my boyfriend and I manage to maintain a “normal” relationship. Between the angry days, bad days,…
There are so many things which are different now than they were a month ago, a year ago, 5 years…